“You choose to be sick, just as you choose to be healthy. By this, I don’t mean that I will get well, the cancer will not return, that just because I do not wish it, my nausea and neuropathies will disappear, I will not develop mouth sores, I will not ache, and my hair will not fall off. I am not talking about things you can measure with MRIs, CT Scans and biopsies.
I am talking about the time when in spite of the neuropathy in my legs, I went to the mall in a wheelchair with my mother; the time when my hematocrit was so low that I ran out of breath every 10 steps, but still went for a stroll in the most beautiful footpath of the city, even though I had to rest at a bench every 20 meters; or the time when I celebrated my sister’s birthday at a restaurant even though I could not eat or drink anything because of extreme nausea.
I speak about the joys of life… The things that no one else can take away from you, only you can deprive yourself of them.”
* This is Emma’s latest unfinished blog post that she intended to publish. On October 20, 2016 our beloved Emma passed away after a 5 year long battle with cancer.
Activist, volunteer, active member of her school community, excellent team leader of Untouchables 3.0 at the Race for the Cure 2016 marathon, optimistic, passionate for life, always surrounded by loving friends and family, this is how you came to know Emma in her personal blog Scars & Scarves.
As Emma would have wished, the Scars & Scarves blog will continue to demystify and mainstream cancer, breaking down taboos about the disease and to demonstrate that “life does not end when cancer strikes; instead it becomes worth living”, as she said in her first blog post.
We look forward to continuing the relationship you began with Emma, continuing to feature many new and young voices speaking out about cancer. Feel free to share with us your personal stories as well as ideas of how the blog should evolve, because we are stronger together!
Emma’s vision and unique smile will continue to inspire and guide us as we launch this new chapter of our blog in order to show that “life does not end with the diagnosis and shouldn’t become reduced down to hospital visits, doctors’ appointments, IV drugs and endless blood tests. Life goes on and it’s in our power to continue living it ridding ourselves of all taboos and prejudices.”
Let’s all continue together, for Emma!
Anastasia, Emma’s sister